Posts

Chemo Week 4, Day 3 THANKSGIVING

 Our Thanksgiving was FANTASTIC!!  Matt made three huge trays of his famous sausage stuffing, plus a ham. And I made peanut butter brownies and mint brownies.  Then we set off for my sister Melanie's house in Woodstock, VA.  Traffic was surprisingly placid so we arrived in record time.  Actually we arrived almost exactly at 11:00 and pulled up in front at the same time as my Aunt Marianne who drove from Lynchburg.   My sister Melanie is THE party planner in our family.  Her house is always festively decorated and her bathroom always has fancy towels, soaps and smelly candles.  I'm always impressed! Her husband, Doug, who is 11 feet tall and generally dressed like a thin Paul Bunyan, was busy in the kitchen fussing over the turkey and a half dozen other pots and pans emitting delicious smells. Her two adorable children : Amy and Christopher who always have energy and joy coming out of their ears were bouncing around my boys before they could e...

Chemo Week 4, Day 1 - Nov 26 2024 Start of Cycle 2

 Today was a BIG medicine day.  Lucy, Ethel, Fred and Ricky.  I was at the Infusion Center from 10 - 3 and then I met with the NP in Oncology for about an hour.  Overall the day was uneventful.  My port took a few tries to access but that is becoming the norm. I'm used to it.  My infusion went fine. My nurse was Alison again. I had a nice corner room of my own. There wasn't much on television so I took a nap and played on my phone.  I enjoy the quiet.   The NP told me that my numbers are great! Apparently there are "Normal Good" and "Chemo good" but MINE are "NORMAL GOOD" so she told me to keep doing whatever I'm doing. Now I just have to figure out whatever I've been doing right. 

Chemo Week 3, Day 7 Nov 25, 2024 (12:30 AM)

 The lobby here at the Residence Inn is about 5 degrees too cold for my liking and my black cardigan is far too thin.  Jenny recently gifted me a thick hooded one but I'm afraid it got lost in the "laundry land" that is our basement. I shall make an effort to locate it before my shift on Friday.  Today is my Sweet Jimmy's 5th birthday! He has become such a powerhouse of personality! He fears nothing. He will hug or tackle anyone without hesitation. He treats every new environment or situation as an opportunity to make new friends. He likes to mimic lines he hears from the TV with the same inflection until he gets it right. ("A few moments later" in a French accent is his current favorite.) IF you don't laugh at something he thinks is funny he will explain it to you til you concede. He loves watching football with Daddy. He doesn't understand it but he will yell "Go Commanders" or "Go Irish" til Dad lets out a whoop telling him his...

Chemo Week 3, Day 3 A Heartfelt, and overdue, Thank you

 We have had the most incredible outpouring of love and generosity and support, quite literally dumped on us in the last month! It has been unexpected and incredibly humbling.  I really need to take a few moments to send some shout outs to some amazing people.   Please note that these are in no particular order To Matt's incredible team at Chantilly High School : I cannot thank you enough.  And to think that none of you have ever met me -- I am speechless.  I mean I know that my husband is loveable but I can't tell you how much it means to me that you all appreciate him as much as you must to be taking such good care of our family.  Not only have you been BEYOND understanding about his needs at work but also the hundreds of dollars worth of gift cards and gifts you sent (our boys love the Dancing Jesus, by the way), the books are exactly my style and the notes made Matt and I both cry.  Thank you so much! OH and the meals!! We appreciate them so m...

Chemo Week 2, Day 1 November 12, 2024 Tuesday = Treatment Day!

 My infusion wasn't scheduled till 11:00 so I was able to travel independently today.  Much to everyone's chagrin.  It was good though, I needed to show myself I could do it.  So, Matt left this morning at 6:00 while I got up the three crazies and got them off to school.  They were dressed, fed and off to school with lunches instruments and nap rolls on time.  I stopped at 7/11 on the way back from the school to get ice for the cooler.  This was easier said than done.  The cooler was stacked high was neatly placed bags of ice but I have serious doubts that anyone but myself had purchased any in a while since the bags had settled or frozen into place creating an impenetrable fortress of ice that even Elsa would have found impressive. After a few attempts at freeing one of the ice bricks I opted to asking for help from the store clerk.  As wiling as he was to assist I was concerned about the effort of reaching he needed to exert as the elastic ...

Chemo Week 1, Day 7 November 11, 2024 FISH HOOKS & FISHINGLINE

 Apparently this is no end to Angler Analogies I may glean from this temporary existence of mine.  I may even being referring to Treatments as my Fishing Trips... Probably not.  I enjoy fishing in the same way I enjoy golfing:     - being outdoors on a beautiful day!     - being near water (whether that be lake, ocean, stream, river or water hazard)     - the mandatory quiet     - the snacks     - the close proximity of alcohol! .... the actual activity at hand ... not so much. Today i visited the Fairfax Vascular Center on Arlington Blvd, for a "MediPort check". After the port access debacle that was last Tuesday, my port had become so "adjustable" I was beginning to feel like a human fidget.  I could literally roll it back and forth from the outside.   It is important to note that the Fairfax Vascular Center is NOT where my port was installed. I requested NOT to return to Dr. Spinosa.  The lovely Doct...

Chemo Week 1 : Day 2 November 6th 2024

 I feel Great! I took my prescribed nausea meds this morning at 7:00 AM with two pieces of homemade French Toast but I haven't felt nauseous.  ( Matt on the other hand has a nasty stomach bug).  Irony? Coincidence?  My brother Robert (Aka Chocolate) sent me a beautiful bouquet of sunflowers!  We also received a whole truck load of gifts and gift cards from Matt's work team. So generous and surprising.   Bonus kiddo Anecdote:  So, yesterday morning, when Matt was handling the boys' morning routine (brilliantly, I might add). He made them French Toast.  This is something my mother does for them when she's in town -- I just pour them cereal, unceremoniously.  Our children LOVE Grandmommy's French Toast! They literally spring out of bed for it and are all smiles at the breakfast table at 6:00 in the morning. (A full thirty minutes earlier than I have to pull them out of bed by their teeth.)   So anyway, my husband serves each child...